Research highlights key themes of long-term brain injury care
Mon 12 Feb 2018
A new piece of research conducted in partnership with Headway Somerset has identified several key issues relating to the long-term community care of brain injury survivors.
The research, led by Dr Alyson Norman from the University of Plymouth (pictured) and case management company Head First, asked 99 people affected by brain injury about their experiences with community organisations.
Five key themes emerged. These were:
1)a poor understanding of brain injury symptoms and problems;
2)poor availability and accessibility to services;
3)a lack of recognition of the impact of brain injury on families and survivors;
4)concerns of safeguarding when a survivor lacked insight or capacity;
5)hidden disabilities being a barrier to receiving appropriate support.
In addition to these themes, the research found that solicitors were ranked most positively in terms of being supportive to understanding the needs of brain injury survivors. Social services were found to perform the most poorly. GPs were ranked both positively and negatively, indicating the mixed understanding of brain injury among primary care services.
Alyson has a deeper involvement with brain injury than conducting academic research. Alyson is a trustee of Headway Somerset and was instrumental in the Somerset Serious Case Review following the death of her brother and brain injury survivor Dave Alsbury, who took his own life in 2014 following failures by health and social care organisations.
This piece of research highlights the continuing need to review and improve community services to improve the outcomes of brain injury survivors.